Tag Archives: Jenny Tansley

$182 Million Spent On Autism Treatment 0$ Spent On Autism Service Dogs

Haldimand do not need an auditor general’s report to tell them that ASD services are in disarray. Our government should be commended for spending $182 million dollars on Autism treatment, however I have yet to meet a single Canadian family satisfied with their services. In 2007 there was thankfully, no wait list for Intensive Behavioral Intervention (IBI). Braydon spent two years working 24 hours a week, one-on-one with IBI therapists from Haldimand-Norfolk R.E.A.C.H. Essentially my toddler had a part-time job and after two years our family was unable to keep up the pace of it. Over $100,000 was spent on Braydon’s Autism Services, but now we were left to fend for ourselves.

Last week National Service Dogs for Children with Autism (NSD) asked a very interesting question on their Facebook page. Has the government considered Service Dogs? In 2012 my son was granted a Certified Autism Service Dog. Before that time, our only options for treatments were pharmaceuticals or privately funded and enormously expensive traditional therapies that were not effective at tracking results. Today, Braydon attends J.L. Mitchener Public School in Cayuga where he is thriving socially and academically. His service dog ‘NSD Whoopi’ attends school with him each and every day. Last month at Braydon’s Parent-Teacher interview I was told that my son was easy to integrate with his peers and all the students seemed to behave better when he and Whoopi were in the classroom. I have a very different little boy than I did a year ago, and the change in my son brings a flood of welcome respite to our home.

$30,000 might seem like an excessive amount of money for a Certified Autism Service Dog, however consider a Service Dog has a working life of 8-10 years. This means for some families like us; desperate for an alternative to treating our son’s autism with medication would receive 24 hour a day, 7 days a week support for 10 years for only $30,000! How much of the $182 million dollars spent on Autism Treatment this year was allocated to this alternative? Zero dollars!!! Incredibly National Service Dogs for Children with Autism provided us this option at absolutely no costs to us either. It is the generosity of the staff and volunteers at NSD and the support of our families and friends right here in Haldimand that brought accessibility for our family to our community. As a result, all of us are able to embrace a much higher quality of life than most families affected by Autism are able to experience.

So…let’s talk about making Certified Autism Service Dogs an available treatment alternative to more families. For the Silo, Jenny Tansley.

Touching Is Our First Form Of Communication

Looks familiar? Uh huh. This image is reworked from the original LP Invisible Touch by Genesis on Virgin Records. CP

 

The moment we become parents we use our sense of touch to communicate with our brand new baby.  I will never forget that first moment in my each of my babies lives, when they started to experience and explore the world completely independently of me.  The first thing I did was reach out to my newborn and without exchanging a single sound, we were instantly familiar to each other.

The research that outlines the benefits of touch and infant massage is extensive.  Any expert will go on and on about how there is a fancy chemical reaction going on in my brain (central nervous system) that releases a feel-good hormone (serotonin) that counters stress hormones (cortisol) and that is why I feel that connection with my newborn.  What I actually experience in those first moments of my child’s new life is nothing short of magical.

This is not meant to imitate the many hundreds of articles that are already out there that outline the benefits of Pediatric Massage Therapy, but there is a little Massage Therapist inside me that cannot encourage you enough to explore it.   Children ages 0-99 can benefit from Registered Massage Therapy, but in the mean time treatment can start at home or even heart beats after birth.

 

Just a few of the types of baby massages. image: yogawiz.com
Just a few of the types of baby massages. image: yogawiz.com

 

 

After spending much time looking for a nursery rhyme that could incorporate a meaningful massage into its singsong format, I decided to write my own for you to try:

Bedtime Butterfly Kisses

Belinda the beautiful butterfly was bouncing on a breeze

Gracefully she glided to give my shoulder a squeeze

“How do you do?” Belinda sung so sweet.

“May I rest here while my heart slows a beat?”

She stopped but a moment before she began to explore

Hugging my arm she looked way down to the floor.

Three times she wandered from shoulder to finger

But I liked her so I indulged, and hoped she would linger.

Perched in my hand, she started stroking my palm

It tickled before I realized it made me feel calm.

She drew circles and hearts with her nose on my skin

Before she giggled and climbed back up to my chin.

With a fluttering kiss to my cheek she gently rubbed my head

And then softly she whispered, “Baby, time for bed.”

Though my eyelids are heavy I try to protest

To forget Belinda when I wake I’d deeply regret

Belinda’s wings push the air across my sleepy face

Like angel kisses made out of the most delicate lace

“Rest well little one,” She sings, “And think not of sorrow.

If you go to sleep now I can come back tomorrow.”

You can be creative and pretend your own hand is a butterfly.  I used an inexpensive IKEA  (Gulleplutt .99$ CP) finger puppet. Don’t let you imagination stop there.  As your child grows out of silly rhymes consider getting creative and making an imaginary pizza on your kiddo’s back, belly or palm. What about planting a garden and watching it grow?

I can give you more research that indicates why it is important to perform these treatments at the same time each day, in a calm space with a warm blanket and yadda yadda, but experience has taught me that even when my son or daughter is in middle of their wildest meltdown behavioral state; a nurturing touch with loving intent is the only cure. For the Silo, Jenny Tansley.

Jenny Tansley

A New Light On Autism

Let there be light

Have you ever noticed how experts constantly refer to Autism as a ‘learning disability’?  I contemplate this term as I watch my nine-year-old son Braydon, effortlessly scale my counter tops to filch the salt and vinegar chips I hid in top shelf.  In fact, Braydon’s problem solving skills exceed that of his ‘neurotypical’ sister.

What would I change in my son’s treatment if I considered my son to have a communication disability rather then a learning disability?  Is this just a title or is it maybe a new perspective?

I am not an expert but here is what I do know.  Individuals who are visually or hearing impaired are considered to have a communication disability.

There are so many reasons why the sensory processing centers in the brains of certain individuals do not receive the input messages from their eyes or ears (or both like Helen Keller).  Autism looks much the same to me.  The sound of my voice competes with all the other sensory information that Braydon is so sensitive to.

The ticking of the clock, the air is too warm or too cold, his seat is too hard or too soft, the bathroom door is about to open and he is going to run away to close it.  These things make up only a fraction of the information coming at my son at all the same intensity!  Braydon’s moderate-severe Autism means that unlike those of us that experts consider ‘neurotypical’, he has no way to filter this information except to create an ‘output’ to counter it.  Experts call this behavior ‘stimming’.  I realize this all sounds confusing, but my point is that High Functioning Autism, like Blindness or Deafness comes down to being a sensory processing issue rather then an inability to learn as the term ‘learning disability’ seems to suggest.

 

Braydon and Whoopi
Braydon and Whoopi

Perhaps this is the reason why a Certified Autism Service Dog has proven to be such an asset to our quality of life?  Service Dogs for the blind and hearing impaired are fairly common.  Is a service dog for a person with Autism a truly enormous stretch?  Trust me, it is a natural progression.

If perforated dots on a piece of paper can give a child who is born without the sense of sight an opportunity to read a book, or a computer can give Carly Fleichman, a girl with asphyxia and Autism the opportunity to find her voice, in theory my son could be able to learn the skills he is going to need to become a contributing member to his community.  Just look at all the things Dr. Temple Grandin was able to accomplish!

My goals suddenly look much different.  Instead of trying to convince my son to learn, perhaps I need only to teach him how to communicate. For the Silo, Jenny Tansley.

Supplemental- From the Silo Summer 2010 Temple Grandin article https://www.thesilo.ca/temple-grandin-a-silo-movie-review-issue2/